Did you have your lymphedema evaluation? I will call tomorrow! I've lost nearly a stone since the op, and have been going to the gym three times a week. 20002023 The Breast Cancer Site and GreaterGood. A coordinator will follow up to see if Mayo Clinic is right for you. All, I am 5 weeks post double MX and have the belly swelling you describe. * To protect your identity do not use your full name. Give yourself patience and space to recover. I have not had reconstruction yet and it has been a year. This is such a common problem after a mastectomy that I would think doctors would admit that it is a problem and address it. I was given a PT referral for lymphedema evaluation. I know part of it is my posture and I am seeing a PT to pull my shoulders back and strengthen my core. Thank you. As I'm 62, this would be impossible and I'm very definitely post menopausal. This could be fluid and needs to be sorted. I wake up not as bloated then as the day goes on, whether I eat or not, the belly bloats. After the surgery, gravity may cause the fluids . When you leave the hospital, youll receive information about your recovery at home. I had a double mastectomy10 years ago. I started this thread back in 2013/4 so there have been lots of views and posts since then. If the mastectomy also took lymph nodes out of the armpit, the arm will always have a tendency to swell. Interested in more discussions like this? Learn how CBCs are used in the treatment of breast cancer. I am new on this site and have been trawling for information. Its not just discomfort- as we all know how uncomfortable the tightness can be! "I had a double mastectomy with no reconstruction about 3.5 years ago. I was always fairly lean until my DMX in 2017. It may also be difficult to sleep flat for a while. Try to get a lymphadema clinic referral as knowing the correct way to massage the lymph system is very important. Dr. David Earle answered General Surgery 32 years experience Variable: While everyone is different, the wounds and healin process should be about 90% complete in the 6-8 week timeframe. Also, try walking to help. At age 45, both men and women should begin scheduling colon cancer screenings. https://www.medicalnewstoday.com/articles/322525 I am a very small frame and I am 74 all most 75 years of age. (2020). If I had a bulge now I look at the lymphatic system. How". dog_lover Member Posts: 8. No chemo or radiation. Infections can happen with any surgery. Surprised how many women are experiencing abdominal bloating. Generally speaking, you may be OK to drive if youre able to make an emergency stop without causing pain or discomfort at the mastectomy site. She was happy with everything. It was part of the reason I had an ER visit post op. I have had bilateral breast cancer with lymph nodes removed and I seem to have to fight to get proper treatment. I am due to have my seroma surgical removed on Tuesday 22 July. My abdominal swelling was caused by reconstruction where they lifted the skin from lower belly to boob. It is 9 days since mastectomy I am very swollen and bruised and swollen particularly under my arm. Arm swelling most often is from lymphedema which can be evaluated and treated by a trained specialist. The hospital and my surgeon said", "Thanks, @amandajro, but agree with @almostoutofthewoods this isnt gastrointestinal bloating which this article addresses. Its lymphatic, not gastrointestinal. Its a long post but there just seems to be so little info available that I wanted to share. Lymphadema is a very distressing problem. New techniques attempt to reduce the amount of dead space created to help prevent seromas from forming. Weve assembled some tips below to help you get started. I had bilateral mastectomy last week, November 3, 2021. It is not a substitute for professional medical advice. "I had surgery Feb. 27, 2019 and had abdominal swelling. Last Thursday, I had a Simple Mastectomy and Sentenal Node Biopsy. Lung Cancer Surgery Recovery Time: How Long Does It Take? if you haven't had surgery,it may be a hernia.maybe ask for an ultrasound?Doesnt sound normal..hard to move forward after BC.. I had a level one clearance with my lumpectomy and, there was an attempt to take a minimal number of lymph nodes from the arm that hadn't had surgery previously along with my mastectomies. I am one of the lucky ones. I woke up from the first surgery with it. All Rights Reserved. Because everyone experiences pain differently, the intensity and duration can vary between individuals. Connection & Conversation: Open for the holidays. Those are your signs to call your doctor for further instructions. I did not know about this. PMPS is thought to be linked to damage done to the nerves in the armpit and chest during surgery. Recovery from a mastectomy typically takes several weeks. Yes, it could be a possible seroma or hematoma. Connection & Conversation: Open for the holidays. Did you get it sorted ? It stimulates the main lymph drainage areas, in you tummy, back and groin. One common reason why your stomach may be bigger after a hysterectomy is constipation. Thanks people, and I hope you're all doing ok. 2022 Breast Cancer Now. researchgate.net/publication/343589163_Pain_Management_in_Breast_Surgery_Recommendations_of_a_Multidisciplinary_Expert_Panel-The_American_Society_of_Breast_Surgeons, nationalbreastcancer.org/blog/checklist-for-recovery-after-mastectomy/, cancer.org/cancer/breast-cancer/treatment/surgery-for-breast-cancer/mastectomy.html, breastcancer.org/treatment/surgery/mastectomy/expectations, uhb.nhs.uk/Downloads/pdf/PiMastectomy.pdf, cancerresearchuk.org/about-cancer/breast-cancer/treatment/surgery/after-surgery/problems-after-mastectomy, cancer.org/treatment/treatments-and-side-effects/physical-side-effects/pain/post-mastectomy-pain-syndrome.html, link.springer.com/article/10.1245%2Fs10434-018-6644-x, cancerresearchuk.org/about-cancer/breast-cancer/treatment/surgery/after-surgery/what-happens-after-surgery. I have very skinny legs and arms, but this huge stomach bulging out!!! (2018). September 2009 edited March 2014 #1. Maximum swelling usually occurs 3-5 days after your surgery and it will generally go away completely in two weeks and even as early as 5 to 7 days. If the procedure involves the formation of the lower breast pocket, the swelling may not be limited to the breasts. I wondered also if it is because of being on the AI killing off all estrogen if that was having an effect. When you can start driving again typically depends on how you feel during recovery. I am not fat just looks like a have a basketball under my shirt. Acute pain from a mastectomy will gradually go away as you heal. My doctor okayed me to have PT to work on the lymphedema. Once the month-long class is completed, as patients we do those twice weekly at home and for me it takes about 30 minutes. @sandyjr and others in this thread.. How to Reduce Your Risk of Breast Cancer: 10 Lifestyle Recommendations, Symptoms of Late Stage Metastatic Breast Cancer, What to Know and Consider Before Having Prophylactic Mastectomy, a dressing or bandage to cover your incision and keep it clean, a surgical drain to help blood and fluid drain from the surgical site, how to care for your incision, including how to bathe or shower, which exercises to do to promote range of motion in your arm and shoulder and how often to do them, what you may expect as far as pain, numbness, or other sensations, how to recognize signs of complications, like infections or lymphedema, when you can start doing certain activities again, such as household chores, driving, and wearing a bra, experienced acute, severe postmastectomy pain, bleeding from the surgical site thats more than you were told to expect, redness, swelling, or pain around your incision, an area thats red, tender, or feels warm to the touch, unexplained swelling around the surgical site, which could be signs of a, persistent swelling in your arm or hand, which can be a sign of, a notebook for tracking medications or for writing down questions to ask your surgeon during your follow-up appointment, a wedge pillow to help keep you propped up in bed or on the couch. I let the doctors convince me that I shouldn't worry about lymphedema and here I am fighting this battle while I'm also about to hear that I have hit the 5 year mark cancer free (a very good bit of news). A mastectomy is a type of surgery that removes the entire breast. What are some tips for mastectomy recovery? I already use compression camisole", "@mariahpendl, I wanted to check in. By signing up, you agree to our Privacy Policy. Is there anything we can do to make the swelling go down? Many of us spent hours researching our treatment decisions. Know that, although it may take some time, youll eventually start to feel better. Mastectomy lymphnodes 15 years ago. Try to have a loved one get the prescription filled when youre on your way home, so youll have it on hand if you need it. Your tissue has been injured due to the stretching and cutting during surgery. what could be wrong and what do i do? Abdominal swelling after surgery - has anyone else had this? Breast Cancer Now is a company limited by guarantee registered in England (9347608) and a charity registered in England and Wales (1160558), Scotland (SC045584) and the Isle of Man (1200). I look like a freak. Thank you! I've just had a CT scan. I 'thought' I was doing it right but I let one cut go and ended up in very bad shape with cellulitis. I found a certified lymphedema therapist and I will make an appointment. Following bilateral Mx I had failed implants and was completely flat.My tummy appeared to be really fat,as wasn't balanced out. GP has suggested that it is related to my surgery ( I wasn't like this prior) and to get the area scanned. My health carrier is Kaiser Permanente and prior to any surgeries, they have patients attend classes guided by physical therapists. Up till then I was completely fobbed off. I already use compression camisole and do the lymphatic drainage, but the belly is annoying. Swelling After Surgery Is it Normal? That I just noticed it now coz I no longer have breasts but we know our bodies, we notice most of the changes especially change in our stomach where most of us are very conscious of. I had a double mastectomy with no reconstruction about 3.5 years ago. This morning I noticed swelling in upper left abdomen. A coordinator will follow up to see if Mayo Clinic is right for you. And. An abdominal CT was normal. I asked her what if I had no arms and she said I was carrying things too far. It's like I'm 8 months pregnant! Might be a bonkers idea but have you asked your medical team if anything external could assist (and be safe)? Mastectomy: Your operation explained. I am not fat just looks like a have a basketball under my shirt. When you return to work can also depend on the type of work you do. A belly binder may just bind the area and not let the lymphs move along. https://www.medicalnewstoday.com/articles/322525. Tell your doctor right away if you have any signs of infection. It took 4-6 months before I could comfortably do sit-ups without swelling or pain. So grateful I found this group! Was told it would get better. I woke up from the first surgery with it. Thanks for you input. I hear you. @aiden727 it took me a year to have my abdominal swell to be identified but when it was I was told it was a common side effect. Usually drains will help to minimize this but not completely prevent it. As always, I stress that I am by no means an expert in this area. It was a perk of why I chose it, and I have. Most have been trained on the job by a mentor some actually have had themselves a mastectomy or lumpectomy for even better first hand advise the m How long will i have tightness and swelling after double mastectomy? This was at a cancer center that was connected to a hospital that had a trauma center! During this time, theyll evaluate your progress, discuss any additional treatments (if needed), and address any concerns you may have. It feels numb. Goodbye surgeon. May I ask if you had reconstruction after your mx? Ive created list of my top eight post-mastectomy issues to relay over to those who ask. So my bulge has added about 20cm to my circumference which is really pronounced when moving from laying to sitting - it looks like one side is flat and the other raises up like its own separate pregnancy! Educational text answers on HealthTap are not intended for individual diagnosis, treatment or prescription. Is there anyway to tell if this is a hematoma orsomething other than normal -without going back to the doctor? It always looks the same, no matter what I do. @almostoutofthewoods There are different lymphedema pads called "swell spots" that are quite helpful. Its likely that youll start out with gentle, low impact exercise and slowly increase in intensity. I think you must consult a doctor on this as they can suggest you something after propec checkups and test reports. Lol You have a foreign object inside your body, which may just want to reject that object. I just wondered if any type of external support item could be worn, thinking some sort of part body stocking, or the fabric used for support tights etc. for the first couple of days I could actually hear the fluid moving around, but this has stopped now. We do this to deter spammers and keep the community safe. Keep a close, very close eye on any cuts (even the smallest). I am also on the Wheat Belly diet, which is similar to Ketono wheat or grains, no sugar, good fats and vegetables, etc. I've lost 2 inches off each thigh and can't keep my trousers up, but my upper tummy just stays distended. Our website services, content, and products are for informational purposes only. If youre scheduled for a lung cancer surgery, you may have a lot of questions about the procedure and the recovery process. However, its more swollen on one side and I am experiencing pain. My doctor says it is IBS but my only symptom is bloated belly. Its like doctors sometimes you have to search for one who is a good fit for your personality) because I was going to be flying on a vacation and I knew sometimes flying can be a trigger. That is great informationI'm going to check into belly binder. I take a stool softener because of the constipation that's a side-effect of the Detral LA I'm on. It is common however to become easi. Go to the Breast Cancer Support Group. Good luck. My care team says they have never seen this but obviously others have had it. Some individuals may develop chronic pain following a mastectomy. You can do research about them on Google to understand how they work. No hernia. Good luck to you! Then I went back to the last page and noticed that @colleenyoung beat me to it. Any use of this site constitutes your agreement to the Terms of Use and Privacy Policy and Conditions of Use linked below. Your surgeon may be have a point that your stomach hasn't changed but it is more visible now because the breasts have been removed. Brenin DR, et al. Talk openly with others about what youre experiencing. Connect with thousands of patients and caregivers for support and answers. Re: Abdominal swelling after surgery - has anyone else had this? I am glad you are paying attention to your body. Im currently three years post-mastectomy and reconstruction surgery. I'm 48 and apparently not peri-menopausal. Video chat with a U.S. board-certified doctor 24/7 in less than one minute for common issues such as: colds and coughs, stomach symptoms, bladder infections, rashes, and more. Instead have been doing core exercises and strength training from the Physical Therapy Dept at our facility. There was nothing wrong with my tummy before this op!! After researching this phenomenon online, I think that it must be due to the antibiotic I will finish today. If you feel sick to your stomach, let the staff know, so they can give you some antinausea medication. Thanks again. Surprised how many women are experiencing abdominal bloating. I'd put it down to the fact that now the boob has gone, I can see this side of my stomach - but not the other, where I still have a boob. could it be fluid? Did they do anything to reduce the seroma? As a retired RN the abdominal bloating made no sense at all. If you had a mastectomy without breast reconstruction, youll be given a prosthesis to wear. I woke up from the first surgery with it. I had sentinel lymph nodes taken then and later all nodes in R arm. Sooooo frustrating. Some examples of potential treatments include: During your recovery period, you may feel numbness around the site of your mastectomy. Exercise is a major key to recovery, in my opinion, and for me that has brought many unexpected benefits. I was very concerned about lymphedema because I was trying to resolve my risks. Good Luck and return to your doctor and get it diagnosed and sorted. I had surgery Feb. 27, 2019 and had abdominal swelling. Did you have your lymphedema evaluation? My surgeon advised against more ops as he felt It could cause more probs down the line He also said we are just seeing the true complications of TRAM surgery. Once the fluid was aspirated, it almost immediately felt a lot better. Its vital that you continue to do these arm and shoulder exercises regularly as you recover. Hopefully the burping and passing gas is the beginning of your relief and your bowels will follow. Youll have difficulty finding clothes, especially if you only have one breast. I am paying the price now and 'paying' includes pain, anxiety and huge bills from my hospital stay and follow ups (I'm just 62 now and so no medicare to soften the financial blow). They just say that because muscle has been removed from my abdomen, the abdominal wall is very thin, so there is not much support. Go to the Breast Cancer Support Group. In some cases, numbness may be temporary and fade over time as you heal, although your surgical scar itself will often remain permanently numb. I bought the 9" abdominal binder from the medical store called Aids for Recovery. In addition to general pain or discomfort, its possible to feel: Chronic pain after a mastectomy may be more common in people who: There are many potential treatments for chronic pain after mastectomy. A 2018 observational study estimated that 20 to 30 percent of people who undergo breast surgery experience some type of chronic pain. i have a huge swelling around my implant breast (mascetomy surgery) and i pulled myself at work. abdominal swelling.I hadn't even heard or considered thatthanks for the info. Abdominal swelling post-chemo clier Member Posts: 29 October 2009 edited March 2014 #1 So, I've just finished 6 months Folfox + Avastin, every other week. This is great info. I woke up from the first surgery with", "@carr That is great informationI'm going to check into belly binder. Thank you Jolamine, very helpful, at least I know what to look out for. I bought the 9" abdominal binder from the medical store called Aids for Recovery. As it turned out there were no lymph nodes removed, just some fatty tissue. So is that it? however,had a DIEP and ended up with seroma in the abdomen,which capsulated,and removed surgically.Consequently I ended up with scar tissue and a protruding tummy. Follow your instincts and if your doctor isn't responsive enough, keep looking for one who will attend to your health needs. Protect your fingers from needle pricks and sharp objects. For these, please consult a doctor (virtually or in person). Learn more. I also wanted to say that it feels like soup one minute and a rugby ball the next ( its also that size!) I hope I have give you some ideas. I know it doesnt seem long, but three years is still three years and it feels good. Depends: It depends how long after gastrectomy.If the swelling happens a few days later, it can be due to infection or bleeding. I now have a very large protruding stomach that seems to get progressively worse as time goes on. I was stage 1", "Hello @almostoutofthewoods and welcome to Mayo Clinic Connect. However, recovery can be longer for some individuals, potentially taking months. I know they cut all of the muscles and nerves and they never recover completely. You have had a post op ct so if it was a seroma they should have been able to see the fluid. He said since things were disturbed during surgery it would take a little time to go down and just wear a good supporting bra which I have been doing but nothing has changed. I saw this video yesterday on youtube explaining swelling after surgery by Dr. William Miami. Any use of this site constitutes your agreement to the Terms of Use and Privacy Policy and Conditions of Use linked below. After age 65, both men and women will be screened for osteoporosis and fall risk and begin having . When you open up your body, youre leaving yourself exposed. A coordinator will follow up to see if Mayo Clinic is right for you. Ugh. Copyright 2000-2022 Cancer Survivors Network. I had a mastectomy and few lymph nodes removal nearly 7 weeks ago and have exactly the same symptoms you have described. When you talk about massage is it literally gentle massage with your fingers. This can include how to care of your incision, which types of arm and shoulder exercises to do, and when you can resume your normal activities. So, any treatment, or have they just said that it will go on its own eventually? It is still early days for you after your operation, so you can expect it to still be slightly tender and swollen. You can do research about them on Google to understand how they work. The swelling is in the left breast and side, naturally, but also in the groin area, upper and lower abdomen, and across my back by my shoulder blades. It's not", "I had surgery Feb. 27, 2019 and had abdominal swelling. As such, you may want to look for a comfortable, but supportive, chair to sleep in during the early stages of your recovery. Like a bowling ball. Keep in mind that the exact timelines can vary based on the type of procedure you have, as well as your overall health. Theyre important to prevent stiffness and improve range of motion near where you had your mastectomy. p.s. My daughter did make me laugh when I showed her my belly. I noticed that you wanted to add a URL to a video. I am a year out of a bilateral mastectomy with no reconstruction and seem to have developed a lot of belly fat and am taking a anastrozole. Not do vigorous, repetitive movements against resistance with the affected arm. It often happens in the arms or legs, but can also happen in the face, neck, trunk, abdomen (belly), or genitals. For some people, this may be about 10 days after surgery. Some examples of things to pack are: Recovering from a mastectomy can be physically and emotionally challenging at times. Pain relief within an hour. I am so thankful you found a therapist who has helped you. For others, it may be longer. Be sure if you go to a physical therapist that you confirm that they have been trained in lymphatic massage. I have had CT scan, Xrays and blood tests and all are normal. Take your time, but dont ignore the muscles. pouch left in armpit. Not standard mastectomy. Its one of several potential treatment options for breast cancer. An abdominal CT was normal. We avoid using tertiary references. I have only taken one pain pill since my surgery, and that was on the first day. None of my clothes fit me and I know I haven't suddenly put on so much weight to make me look 6 months pregnant! Funds are paid by Greater Good Charities to benefiting organizations as a grant. This occurs when the bowels do not move regularly, which can cause bloating and abdominal pain. Thank you all so much. They are not keen to remove the fluid unless it is essential, as it tends to build up again quite quickly. While everyone is different, the wounds and healin process should be about 90% complete in the 6-8 week timeframe. The dr said that it was lymphatic fluid gathering at the bottom of my breast due to the surgery. Checklist for recovery after mastectomy. I hope that your recuperation continues to progress. However, it is important to remember that it is generally not harmful. Skin-Sparing Mastectomy: Reconstruction, Recovery, and More. (2020). If this is the case, get instructions from your surgeon on how to care for your surgical drains at home. Also given the line that "it just looks bigger because you have no breasts". Possible problems after mastectomy. Its also possible that you may be offered physical therapy during your recovery period. Chronic pain after mastectomy happens due to nerve damage. This is a good video, and maybe some of the breast surgeons discussed on this thread should watch it. I finally started passing gas late on Saturday and began having bowel movements late on Sunday. Connection & Conversation: Open for the holidays. A belly binder may just bind the area and not let the lymphs move along. The hospital and my surgeon said the swelling was not swelling, they said my stomach appeared to me to be swollen because I did not have breasts. Thanks! @delight I think of you often, I apologize that I kind of lose track of conversations. Eighteen ways to reduce bloating: Gone up several sizes despite losing weight. Connect with a U.S. board-certified doctor by text or video anytime, anywhere. I started physical therapy 2 weeks ago and the physical therapist could tell right away that it was fluid. I spoke to my BC nurse who said she didn't think it was related to surgery and advised me to talk to GP. If it's just mild swelling, sometime it is just due to bloated intestines.If the gastrectomy was several weeks or months ago, the considerations include ascites (abdominal fluid), a hernia, versus tumor regrowth.Talk with your surgeon to learn more. Have a lovely Sunday and again thanks for your reply. My seroma was only found after I had a full body scan when a primary was found in my second breast. Mine has in ever since chemo so thought it was from that but other folks noticed it after anesthesia. I started to post the video after reading your comment, impulsive? Right after surgery, you're limited in your range of motion from the inflammation and tissue healing in your body. When can I resume my normal activities after a mastectomy? Your surgeon may prescribe a pain medication to take after you leave the hospital. Performing specific exercises after a mastectomy or breast reconstruction can help keep the range of motion in your shoulder and arm, relieve stiffness and pain, and reduce swelling. I had a mastectomy one year ago and now i am noticing swelling and pain in my arm. Conclusion: Abdominal wall paralysis is an underdiagnosed complication after thoracic surgery. If anyone has a rave review of someone who does MLD (manual lymphatic drainage) in Minneapolis, please share. It can spread to the abdomen due to the lower breast pocket and gravity. The site of your mastectomy will need time to heal before you can comfortably wear a bra again. Do you think I would benefit from a chest and abdominal binder? Its hard to get people to understand that. These include redness, pain, heat, increased swelling, or fever. I don't tend to wear my prosthesis in my bra, but have noticed that when I do, my tummy disappears just like the non-mx side. Go to the Breast Cancer Support Group. I already use compression camisole and do the lymphatic drainage, but the belly is annoying. Most people who have a mastectomy only need a short hospital say. HealthTap uses cookies to enhance your site experience and for analytics and advertising purposes. All the best to you. Now I will insist on therapy for abdomen as well as arms. ", "I am a year out of a bilateral mastectomy with no reconstruction and seem to have". Prophylactic mastectomy is surgery to remove breast tissue. But, from a surgeon's point of view, your feeling about your belly isn't important. Chronic pain after breast surgery: A prospective, observational study. It's called MLD, or manual lymphatic drainage. Your lymph nodes help filter out harmful substances. Was told it would get better. After a radical mastectomy many of the lymph nodes have been removed in the armpit or axilla. I haven't been horrendously uncomfortable most of the time. If youre unsure if its safe for you to drive, ask your surgeon for their advice. He's focused on getting the cancer out. Of course, I could just be obese in that area. Don't leave it to get better on its own as the longer the fluid is there the harder it seems to get rid of it. This might happen after your nurse removes the wound drain if you have one. Nguyen list some of the most important ones: Women should get cervical cancer screening starting at age 21 and should discuss breast cancer screening starting at age 40. However, some people may have a longer recovery period. Some of those nerve ending may regenerate themselves; but for the majority of women, the end result is a lack of sensation. I understand they are focused on saving our lives but discounting our side effects is really disheartening. Every time he had breast augmentation, it can cause some surrounding swelling to the upper abdominal wall for a week or 2 after surgery. This can be treated in several ways, including the medications and therapies discussed above. Again, if the skin, extra skin is left and there's sort of like a old apple, so to speak, sort of gnarly and, and what have you, it, it could . However, its important to be aware of the signs of a potential complication so that you can seek help. I was hospitalized for 6 days and have permanant damage to my left hand that will never improve. When having a mastectomy, your breast tissue is cut away from your skin. Swelling after mastectomy A 69-year-old female asked: How long will i have tightness and swelling after double mastectomy? She had me purchase an abdominal binder which I wear only during the day. With this in mind, try to prep your house and supplies ahead of time. Complete your request online or contact us by phone. I do have mirrors in my house and my stomach never stuck out before. All Rights Reserved. Youll also be given a leaflet that has written and visual descriptions of these exercises. Oooh! I'm not familiar with the details of this type of procedure or the complication which has occurredjust very sorry you have found yourself in this situation. All rights reserved. There's no way to completely predict or prevent breast cancer. I have found the vibration on a cycle track is very good. I bought them from Dick's Sporting Goods Store. I am now almost 72, retired, and I don't wear a bra with forms unless I dress up, so my body resembles a man with a big beer belly. @kk57 See if you can get a referral to a physical therapist who addresses lymphatic massage. @chamisa I am really glad you contacted your doctor right away. From surgery to chemotherapy to radiation and for years later, many of those scars remain. Go back to your doctor and ask for a scan that will show up fluid. Funny how simple but just needed to hear someone else say go get it checked!, Why would you not wont to go back to your doctor?It could be a seroma. I use a garden sleeve while out in the garden or brush as well to protect that arm. Connect with thousands of patients and caregivers for support, practical information, and answers. Hi, I'm new here and have been too busy to consistantly lurk! I'm afraid that I've turned a bit psycho since my diagnosis and was fairly sure my bulge was either pancreatic or peritoneal cancer tumours. You should go to a certified lymphedema therapist, or CLT. Its frustrating that doctors dont take lymphedema more seriously, but I guess theyre just focused on ridding us of the cancer. Lymphedema but good woman that she is followed it up by "I'm just joking". Any use of this site constitutes your agreement to the Terms of Use and Privacy Policy and Conditions of Use linked below. Any ideas why the arm swell, or become edematous, after a radial mastectomy? She probably shouldn't experience any swelling if the skin has been placed down flat by the surgeon. Can a Mastectomy and Breast Reconstruction Be Performed at the Same Time? It has been almost a month since we talked and you have had your appointments. Very long story short I developed lymphedema out of the gate following surgery in my left arm. Thanks for the info, but it's definitely not a regular "bloating" or digestion problem. Dr. Harness comments on the degree of swelling a woman should expect after her double mastectomy. Stay vigilant. Here's what you. Thank you, @carr. Other things to consider having on hand at home are: Its likely that youll need some help at home in the days and weeks after your mastectomy. 1998-2023 Mayo Foundation for Medical Education and Resreach. Please keep in touch and let us know how you get on. It's very common, especially with those who have had a double mastectomy. I'm not tiny but I've never had such a big upper tummy! I have not had reconstruction yet and it has been a year. I had sentinel lymph nodes taken then and later all nodes in R arm. Youll see the scars of where your cancer and breast once were. Great news but now2 months out I still cant wear my clothes. I was stage 1 in my left breast, but had the double as a preventative measure, since I never wanted to go through this again. I too had 'mild' lymphedema.now I have hand and arm damage and it's not so mild. Try to make the circle as big as you can and move both shoulders at the same time. Hi, I had my mastectomy in April, and ever since the op I've had upper abdominal swelling. I had to fight with the doctors to get care and ultimately had to take it upon myself to get PT and massage therapy (which I had to pay for myself) because they kept saying I didn't have it. I had a modified radical mastectomy, chemo and radiation in 1996-1997. Do I now walk around in constant discomfort, looking 4 months pregnant? I find that trawling the Internet expeciallythe US sites can throw up some useful information but you do need to read it with care. I have not had reconstruction yet and it has been a year. In addition to general pain or discomfort, it's possible to feel:. Thank you Carr for the valuable information. Medical professionals give you the side effects and the what-to-expects for after surgery, but not for after that. I just googled abdominal lymphedema after breast cancer and yes, I'm sure that is", "I'm here because of the bloated stomach I noticed just today. "Surprised how many women are experiencing abdominal bloating. Spivey TL, et al. I proactively insisted on a referral to a lymphedema therapist (who incidentally was awful I have since found a kind, caring, and helpful therapist. Please note, we cannot prescribe controlled substances, diet pills, antipsychotics, or other abusable medications. These same lymph nodes that drain the breast can also b A mastectomy bra is usually fitted by a lady who is a trained specialist and is able to measure each patient and determine their size and options. Be sure if you go to a physical therapist that you confirm that they have been trained in lymphatic massage. I wear the abdominal binder during the day at work and the shorts if I'm relaxing around the house etc.. I wondered also if it is because of being on the AI killing off all estrogen if that was having an effect. I wear the abdominal binder during the day at work and the shorts if I'm relaxing around the house etc.. I am huge, I have had four children and I didn't get this big in my abdominal area. Your surgeon can give you a more specific timeline for how long your recovery period may last. Owned and operated by CharityUSA.com, LLC. My GP doesn't seem bothered, and my BCN says it will 'probably go away'. Great news but now2 months out I still cant wear my clothes. You should be off narcotic pain medication before driving again. I had my mx last December and unless I wear my prosthesis I look pregnant - not a good look LOL x. Hi, thank you for responding. Go to the Breast Cancer Support Group. I have mild lymphedema in one arm after a bilateral mastectomy where seventeen lymph nodes were removed. Youll generally need to avoid doing household chores and lifting heavy objects for a set period of time. As a matter of fact, I have found two phlebotomists that will honor this. A coordinator will follow up to see if Mayo Clinic is right for you. Life is full and good post cancer and treatment. This results in nerve endings being shredded. So grateful I found this group! It amy require treatment with Dr. Pamela Pappas and another doctor agree. This was my second bout of cancer, as I had a lumpectomy the previous year. Was told it would get better. Melatonin and Breast Cancer: Is it Safe and Can it Help? Reconstructive surgery can be performed at the same time as your mastectomy surgery. I do find that some of those things help, just to make sure that gas doesnt make a bad problem worse. You should go to a certified lymphedema therapist, or CLT. Thanks, @amandajro, but agree with @almostoutofthewoods this isnt gastrointestinal bloating which this article addresses. It's horrible enough going through cancer and treatment and all of the problems involved without having this disfiguring problem. Its lymphatic, not gastrointestinal. I was discussing my request for lymphedema consideration when I went for blood work etc. I had no reconstruction and try to go to gym and walk 3 times a week but doesnt seem to help. Healthline Media does not provide medical advice, diagnosis, or treatment. All Rights Reserved. Its possible that you may go home with one or more surgical drains. linwin xx. Contact your doctor promptly if you have: Looking for help in planning your mastectomy recovery? I am on Cefadroxil, which does make me nauseous if I take it on an empty stomach. Also, try walking to help. If anyone has a rave review of someone who does MLD", "Thank you! Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. I don't know what she's gonna say about it. If people got proper training, they would know about lymphedema and be able to give proper treatment. She did Manual Lymphatic Drainage (MLD). What are the symptoms of complications after mastectomy? In some cases, the skin and tissue need to be augmented with a breast implant to achieve the desired breast size. It's most common after operations that remove tissue in the upper outside portion of the breast or the underarm area. I did find this information which may be helpful to see if there are things in your day-to-day that you can add or modify to support reducing bloating. (2020). When breast cancer is present, surgeons will take a few lymph nodes (if not more) to determine the stage and spread of cancer. I started physical therapy 2 weeks ago and the physical therapist could tell right away that it was fluid. Me too. If you belong to a medical group, they may be able to recommend a physical therapist, but you do want someone knowledgeable in lymph massage. @carr I never had trouble doing that either before all this. @chamisa See my post below. Its important to stick to your recovery plan. I had mastectomy and TRAM flat reconstruction on April 6, 2020. I had surgery Feb. 27, 2019 and had abdominal swelling. When you get home from the hospital, your movements and range of motion will be more limited. Most of the people faces problem after surgeries but then you must be really cautious about all these problems. Another time I got a call from a nurse in my doctors office about adding patient requests blood be drawn from the foot because of breast cancer. The nurse made a comment about good luck with that (my words). My seroma was only diagnosed after a scan. I had my op on both breasts on the Thursday and my drains were taken out on the Saturday. The doctors kept telling me I wouldn't get lymphdema with just one node removed. Hard to feel good about oneself when you look 8 months pregnant. This depends on your overall health as well as the type of procedure you had. Please support The Breast Cancer Site by adding us to your ad blockers whitelist ads help us to support those fighting Breast Cancer. X. Coral 5 months ago in reply to LizzieMillie. How are you doing? That was two years ago and I never did the belly binder. Any ideas? What Causes Stomach Bloating After Breast Augmentation Surgery? Figure 1. Sigh. Prior to your procedure, reach out to loved ones to ask if they can help you with things like: Put together a bag to bring with you to the hospital. I didn't have chemo or radiation and I only took anastrozole for 5.5 months, after bad side effects. I started physical therapy 2 weeks ago and the physical therapist could tell right away that it was fluid. If youre experiencing prolonged pain after the procedure, discuss your treatment options with a doctor. You will be able to add URLs to your posts in a few days. I am now on a very strict program of PT, massage, and bandaging to keep the lymphedema under control. They were wrong (and @trixie1313 ) I too have Kaiser and I wish my care had been as complete as yours.sigh. The hospital and my surgeon said", "I have mild lymphedema in one arm after a bilateral mastectomy where seventeen lymph nodes were", "@chamisa See my post below. By using our website, you consent to our use of cookies. If you feel tightness across your incision or chest, start with smaller circles. I have not had lymphedema per se, but twice now have experienced axillary web syndrome or cording and cannot express to you how important the exercises are. Does it go away? After you wake up from the anesthesia, you may notice that you have: Youll be given pain medication to help ease discomfort. I am a year out of a double mastectomy and seem to develop a lot of upper belly fat. The content on this site is for informational purposes only. Has anyone else had this? I may have some in my abdominal area as well but I have been focused on my arm. Connect with thousands of patients and caregivers for support, practical information, and answers. Also given the line that it just looks bigger because you have no breasts. It takes time to completely recover from a mastectomy. Youll likely need to wait 3 to 4 weeks before resuming other types of exercise. Thanks for listening. This is particularly true with women who have had a mastectomy. Watch out for a fever, swelling, redness, and added pain. Pain management in breast surgery: Recommendations of a multidisciplinary expert panel the American Society of Breast Surgeons. Frustrating trying to buy clothes that dont make me look pregnant. Please keep in touch and let us know how you get on. So consensus seems to be to talk to either GP or BCN, it won't just settle on its own? Doctors typically provide answers within 24 hours. This is great info. Its important to talk with your surgeon about which specific activities you can do when you get home. Repeat this movement 5 times. Regular massage, especially deep tissue, can be harmful. 1998-2023 Mayo Foundation for Medical Education and Resreach. When you do this, your care team and loved ones can help provide the support you need during your recovery. Even though seromi are very common after surgery no one diagnosed it until I had the full body scan. things that can help you while showering or bathing, including: items to help with surgical drains (if you have them), such as: a drain lanyard for the shower, which can help to keep surgical drains from dangling, a mastectomy drain apron or jacket, which has pockets designed to secure surgical drains, comfortable pants, such as yoga or lounge pants, shirts that fit loosely and that can button or zip in the front, something to keep you entertained in your hospital room, such as a book, magazine, or tablet. I don't suppose that this has helped you a lot but I hope it has maybe pointed you in a direction that will help you to find a way out yourself. Ido have swelling around my side and back, and under my arm, and a feeling on the upperunderside of my arm of a rubbing sensation, as if it's badly grazed.i guess this is all post op symptoms but just wondered if anyone else has experienced this. Pleased if that helped spark further ideas. Thanks again for trying to help! The maximal effect i Dr. Susan Rhoads and another doctor agree. It was frustrating. I woud look at your lymph system as the areas you have highlighted sound like the main lymph drainage areas. Thank you, @carr. My prophylactic, bilateral mastectomy with immediate reconstructionwith implants, has developed severe swelling on left side. We mustnt just accept. @trixie1313 yes, am pursuing that. Hi Delight, welcome. , Well my results turned out different I went for a colonoscopy and an endoscopy today and my doctor said that I could possibly have a hiatal hernia I will be able to confirm it Monday because I'm having a CT scan with contrast and they're supposed to let me know something but so far that's what they say my bump is I pray everybody figures out what theirs is. Lots of swelling but few if any, caused by pedicle tram recon. Not only can this help you feel more confident, but this individual can also take over if you experience pain or discomfort while driving. Medical procedures always scare me now. This feels", "@kk57 See if you can get a referral to a physical therapist who addresses lymphatic massage.". Last Thursday, I had a Simple Mastectomy . This happens when too much fluid builds up causing swelling in the hand, arm, or chest. Now lets explore when you may be able to restart certain activities after your mastectomy. My left ankle has been swelling in hot weather but is not swollen this morning. This includes scrubbing, pulling, or pushing. You have had a double mx but don't say you have been reconstructed, so no tummy interference. Breast reconstruction with flap surgery is the most complex breast reconstructive option. But on the best positive ever i am 5 years clear . Did this swelling resolve for anyone? To learn more, please visit our. This build-up might cause swelling and discomfort. Kaiser also offers their patients an "after breast surgery" training class by the physical therapy department whereupon one does a series of stretching, core, weight training (stretch bands and free weights), and then finishing with stretching exercises. Because of this, its unlikely that youll have to return to the hospital or a doctors office to have them removed. But the causes are not known for sure. @carr Please consult your healthcare provider with any questions or concerns you may have regarding your condition. This is a soft, lightweight breast form that can be worn inside your bra. Also wearing an abdominal binder is recommended. Right after surgery, youre limited in your range of motion from the inflammation and tissue healing in your body. Doing so can help your recovery go as smoothly as possible. How are you feeling after your mastectomy? The hospital and my surgeon said the swelling was not swelling, they said my stomach appeared to me to be swollen because I did not have breasts. 2005-2023 Healthline Media a Red Ventures Company. Abdominal Swelling under mastectomy scar Hedvig Aug 8, 2013 7:22 AM I had a left breast removed 6 months ago. I can't put the link. Its hard to get people to understand that. She did Manual Lymphatic Drainage (MLD). Top answers from doctors based on your search: Created for people with ongoing healthcare needs but benefits everyone. Your surgeon will talk with you about when this may be possible. You will know if you develop a seroma. New research suggests that melatonin may help lower the risk of breast cancer, slow the growth of breast cancer, and help make breast cancer. And contact the incontinence nurse for help with retaining the control I have. Stomach bloating is generally related to several different factors. How long was your tummy swollen for? Also given the line that it just looks bigger because you have no breasts. Over my 5 years of treatment I have found that you need to be proactive with your treatment and my doctors have been very receptive to answering questions. I do not get my blood drawn at the cancer center nor the hospital associated with it. I had surgery Feb. 27, 2019 and had abdominal swelling. This may be 2 weeks or longer. It's most often felt in the areas of the chest wall, armpit, or arm. Publication types Case Reports Review MeSH terms Abdominal Wall / innervation Abdominal Wall / physiopathology* Humans Ask to see a lymphedema specialist for help. Although I have been told the common reply from my surgeon and family Dr. that I just didn't see it before because my breasts were there, that is total B.S. Side Effects (Stomach distended and hard and will Not go away): I just had a bilateral mastectomy on the 29th of April 2020 and my drain stayed in for about 4 weeks but after I was able to move around I noticed that my stomach was like really hard and round exceptionally round like a beer gut and I was thinking it was because I didn't have breast anymore but it's not that, it is still that way now and I supposedly been able to go back to work 6th June and it has not left and I have lost the weight not a lot but I have lost the weight but that stomach is still hard and still be big like I'm pregnant and it's very upsetting and I've asked about it at my doctor and nobody is able to tell me so I'm having a colonoscopy in a few weeks and I asked for an endoscopy to see if it's something in there if someone finds out any information please let me know cuz I will tell you the results of my endoscopy if they find anything I'm going to ask the gastroenterologist about it, good luck ladies is all I can say and I didn't have the reconstructive surgery because I had breast cancer before and I had radiation and they told me that on that particular side I was not going to be eligible for it because my skin would not stretch anymore, but if anybody knows anything please put it on here so I can read it thanks and I'm praying for us all to figure out how we can Live with this new shape of our body that I don't think you're not supposed to have, Thanks and you are absolutely right! A good tip would be to place commonly used items like clothes, toiletries, plates, and utensils within easy reach. I never was informed about the possibility of lymphedema at all by any medical person, but an acquaintance had it so at least I was aware. Keep at your PT and massage and other care. @mariahpendl, I wanted to check in. Hi, I've just joined the site, and wondered if anyone can help. There is a brief period where new members can't post links. A mastectomy is designed to take as much breast tissue as the surgeon can, this includes tissue in the arm pit. Use of this online service is subject to the disclaimer and the terms and conditions. Did you get a response? That is great informationI'm going to check into belly binder. That was a great article about relieving abdominal bloating. I am not fat just looks like a have a basketball under my shirt. does it eventually go down? Six years later I have a perfectly flat stomach but can still feel a pull. I had a bi lateral mastectomy five years ago and only one lymph node removed on my left and two on my right (where the invasive cancer was). This feels different like an unusual fluid retention in the belly region. I'm here because of the bloated stomach I noticed just today. Mine was the result of abdominal reconstruction taken from my tummy and tunnelled up to my breast. I noticed I have a bloated stomach when I washed myself up. This can happen if you have a more extensive procedure, such as a radical mastectomy or if you have breast reconstruction during your mastectomy. Bruising and some swelling are common in women after surgery. Are these options things you've already tried or are doing? I am 49 yrs old and have to wear my husbands clothes because I cannot fit my belly into mine. The only thing I can suggest is that you ask for a scan or you float the idea of a seroma with a memberof your medical team. The amount of time taken varies from person to person, but usually this ranges between 4 and 8 weeks. But it does seem just that bit more than those would explain. Your recovery time can depend on a variety of factors, like the type of mastectomy that you had and your overall health. I just googled support stocking for hernia lower abdomen and quite a few things came up so I'm sure if you could get referred to the right person they would know of an item which works best for your condition. (regarding that, I wonder if guys had needles stuck in their privates if they would be a little more sensitive with their needles???) Thanks, I am going to email my consultants and see if they have recommendations for Physio- you are on it! Then revision surgery on August 3rd. I've tried every logical thing I can think of and nothing helps. There are several reasons why constipation may occur after a hysterectomy, including pain medication, a sedentary lifestyle, and a lack of fiber in the diet.

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